AboutAbout the survey
EUROlinkCAT Information and Support Needs Survey
About the survey
We would like to invite you to take part in this European online survey which aims to explore your thoughts about (1) the information you have received about your child’s health condition and your experiences of support, and (2) how the COVID-19 pandemic may have affected your child, their medical care, support, and your family life.
We would be very grateful for your participation in the survey if you are a parent or carer (including adoptive and foster parents) of a child up to 10 years of age and who was born with one or more of the following health conditions:
- Cleft lip (with or without cleft palate)
- Spina bifida
- Congenital heart disease that required surgical intervention
- Down’s syndrome
The survey will take approximately 20 minutes to complete and you will only need to complete it once. The survey will be anonymous, and we will not collect any personally identifiable information about you.
How to take part
The survey is currently available in five languages. More langauges will be available soon.
If you would like to take part, please click one of the following links:
For more information about the survey please see the Participant Information Sheet or you can contact Dr Elena Marcus (the lead researcher for this study) at firstname.lastname@example.org.
The survey will be open until 31 May 2021.