Where Am I? -> WP 1 - Co-ordination and Management -> Partners by Work Package
Direct link to this page: http://www.EUROlinkCAT.eu/wp1-co-ordinationandmanagement/partnersbyworkpackage

Participating Registries by Work Package

For full contact list found in Key Project Documents here

WP1 Coordination
Partner Acronym Institution Lead Contact
1 SGUL St George's, University of London Prof. Joan Morris
2 UU University of Ulster Prof. Maria Loane
3 RSD Hospital Lillebaelt, Region Syddanmark Denmark Dr. Ester Garne
4 UNEW University of Newcastle upon Tyne Prof. Judith Rankin
5 UNIFE Università Degli Studi Di Ferrara Dr. Amanda Neville
6 KDB Klinika za djecje bolesti Zagreb Prof. Ingeborg Barišić
7 CNR-IFC Consiglio Nazionale Delle Ricerche- Institute of Clinical Physiology Dr. Anna Pierini
8 UMCG Universitair Medisch Centrum  Groningen, Dr. Hermien de Walle
12 PUMS Poznan University of Medical Sciences  Prof. Anna Latos-Bielenska
20 BIOMED Biomedical Computing Ltd Dr. James Densem
WP2 Central Results Repository
Partner Acronym Institution Lead Contact
1 SGUL/BINOCAR St George's, University of London Prof. Joan Morris
     BINOCAR_CAROBB Congenital Anomaly Register for Oxfordshire, Berkshire & Buckinghamshire Prof. Jennifer Kurinczuk
     BINOCAR_EMYSCAR East Midlands and South Yorkshire Congenital Anomalies Register, University of Leicester Prof. Elizabeth Draper
     BINOCAR_NORCAS Northern Congenital Abnormality Survey Prof. Judith Rankin
     BINOCAR_SWCAR South West Congenital Anomalies Register Dr. Karen Luyt
     BINOCAR_WANDA Wessex Antenatally Detected Anomalies Register Dr. Diana Wellesley
2 UU University of Ulster Prof. Maria Loane
3 RSD Hospital Lillebaelt, Region Syddanmark Denmark Dr. Ester Garne
4 UNEW University of Newcastle upon Tyne Prof. Judith Rankin
5 UNIFE Università Degli Studi Di Ferrara Dr. Amanda Neville
6 KDB Klinika za djecje bolesti Zagreb Prof. Ingeborg Barišić
7 CNR-IFC Consiglio Nazionale Delle Ricerche- Institute of Clinical Physiology Dr. Anna Pierini
8 UMCG Universitair Medisch Centrum, Groningen Dr. Hermien de Walle
9 PHW NHS Public Health Wales National Health Service Trust Mr. David Tucker
10 INSERM Institut National de la Sante et de la Recherche Medicale Dr. Babak Khoshnood
11 FISABIO Fundacion Para el Fomento de la Investigacion Sanitaria Y Biomedica de la Comunitat Valenciana Dr. Clara Cavero Carbonell
13 THL Terveyden ja Hyvinvoinnin Laitos Prof. Mika Gissler
14 OMNI NET International Charitable Fund Omni-Net for Children Dr. Nataliia Zymak-Zakutnya 
15 OVGU Otto-Von-Guericke-Universitaet Magdeburg, Dr. Anke Rissmann
16 INSA Instituto Nacional de Saude Dr. Ricardo Jorge Dr. Carlos Matias Dias
17 CHUReunion Hospitalier Universitaire De La Reunion Dr. Hanitra Randrianaivo
18 PIH Provinciaal Instituut Voor Hygiene, Dr. Vera Nelen
19 BIOEF Asociacion Instituto Biodonostia Dr. Olatz Mokoroa Carollo
20 BIOMED Biomedical Computing Ltd Dr. James Densem
22 SU Swansea University Mr. Daniel Thayer
i MALTA Ministry for Health, Malta Dr. Miriam Gatt
ii NORWAY The Norwegian Institute of Public Health and the University of Bergen Prof. Kari Klungsøyr
WP3 Mortality
Partner Acronym Institution Lead Contact
1 SGUL St George's, University of London Prof. Joan Morris
     BINOCAR_CAROBB Congenital Anomaly Register for Oxfordshire, Berkshire & Buckinghamshire Prof. Jennifer Kurinczuk
     BINOCAR_EMYSCAR East Midlands and South Yorkshire Congenital Anomalies Register, University of Leicester Prof. Elizabeth Draper
     BINOCAR_NORCAS Northern Congenital Abnormality Survey Prof. Judith Rankin
     BINOCAR_SWCAR South West Congenital Anomalies Register Dr. Karen Luyt
     BINOCAR_WANDA Wessex Antenatally Detected Anomalies Register Dr. Diana Wellesley
3 RSD Hospital Lillebaelt, Region Syddanmark Denmark Dr. Ester Garne
4 UNEW University of Newcastle upon Tyne Prof. Judith Rankin
5 UNIFE Università Degli Studi Di Ferrara Dr. Amanda Neville
6 KDB Klinika za djecje bolesti Zagreb Prof. Ingeborg Barišić
7 CNR-IFC Consiglio Nazionale Delle Ricerche- Institute of Clinical Physiology Dr. Anna Pierini
8 UMCG Universitair Medisch Centrum, Groningen Dr. Hermien de Walle
9 PHW NHS Public Health Wales National Health Service Trust Mr. David Tucker
10 INSERM Institut National de la Sante et de la Recherche Medicale Dr. Babak Khoshnood
11 FISABIO Fundacion Para el Fomento de la Investigacion Sanitaria Y Biomedica de la Comunitat Valenciana Dr. Clara Cavero Carbonell
13 THL Terveyden ja Hyvinvoinnin Laitos Prof. Mika Gissler
14 OMNI NET International Charitable Fund Omni-Net for Children Dr. Nataliia Zymak-Zakutnya 
15 OVGU Otto-Von-Guericke-Universitaet Magdeburg, Dr. Anke Rissmann
17 CHUReunion Hospitalier Universitaire De La Reunion Dr. Hanitra Randrianaivo
18 PIH Provinciaal Instituut Voor Hygiene, Dr. Vera Nelen
19 BIOEF Asociacion Instituto Biodonostia Dr. Olatz Mokoroa Carollo
22 SU Swansea University Mr. Daniel Thayer
i MALTA Ministry for Health, Malta Dr. Miriam Gatt
ii NORWAY The Norwegian Institute of Public Health and the University of Bergen Prof. Kari Klungsøyr
WP4 Morbidity
Partner Acronym Institution Lead Contact
1 SGUL St George's, University of London Prof. Joan Morris
     BINOCAR_CAROBB Congenital Anomaly Register for Oxfordshire, Berkshire & Buckinghamshire Prof. Jennifer Kurinczuk
     BINOCAR_EMYSCAR East Midlands and South Yorkshire Congenital Anomalies Register, University of Leicester Prof. Elizabeth Draper
     BINOCAR_NORCAS Northern Congenital Abnormality Survey Prof. Judith Rankin
     BINOCAR_SWCAR South West Congenital Anomalies Register Dr. Karen Luyt
     BINOCAR_WANDA Wessex Antenatally Detected Anomalies Register Dr. Diana Wellesley
2 UU University of Ulster Prof. Maria Loane
3 RSD Hospital Lillebaelt, Region Syddanmark Denmark Dr. Ester Garne
4 UNEW University of Newcastle upon Tyne Prof. Judith Rankin
5 UNIFE Università Degli Studi Di Ferrara Dr. Amanda Neville
6 KDB Klinika za djecje bolesti Zagreb Prof. Ingeborg Barišić
7 CNR-IFC Consiglio Nazionale Delle Ricerche- Institute of Clinical Physiology Dr. Anna Pierini
8 UMCG Universitair Medisch Centrum, Groningen Dr. Hermien de Walle
9 PHW NHS Public Health Wales National Health Service Trust Mr. David Tucker
11 FISABIO Fundacion Para el Fomento de la Investigacion Sanitaria Y Biomedica de la Comunitat Valenciana Dr. Clara Cavero Carbonell
13 THL Terveyden ja Hyvinvoinnin Laitos Prof. Mika Gissler
16 INSA Instituto Nacional de Saude Dr. Ricardo Jorge Dr. Carlos Matias Dias
17 CHUReunion Hospitalier Universitaire De La Reunion Dr. Hanitra Randrianaivo
19 BIOEF Asociacion Instituto Biodonostia Dr. Olatz Mokoroa Carollo
22 SU Swansea University Mr. Daniel Thayer
WP5 Education
Partner Acronym Institution Lead Contact
1 SGUL St George's, University of London Prof. Joan Morris
     BINOCAR_CAROBB Congenital Anomaly Register for Oxfordshire, Berkshire & Buckinghamshire Prof. Jennifer Kurinczuk
     BINOCAR_EMYSCAR East Midlands and South Yorkshire Congenital Anomalies Register, University of Leicester Prof. Elizabeth Draper
     BINOCAR_NORCAS Northern Congenital Abnormality Survey Prof. Judith Rankin
     BINOCAR_SWCAR South West Congenital Anomalies Register Dr. Karen Luyt
     BINOCAR_WANDA Wessex Antenatally Detected Anomalies Register Dr. Diana Wellesley
3 RSD Hospital Lillebaelt, Region Syddanmark Denmark Dr. Ester Garne
4 UNEW University of Newcastle upon Tyne Prof. Judith Rankin
5 UNIFE Università Degli Studi Di Ferrara Dr. Amanda Neville
7 CNR-IFC Consiglio Nazionale Delle Ricerche- Institute of Clinical Physiology Dr. Anna Pierini
9 PHW NHS Public Health Wales National Health Service Trust Mr. David Tucker
13 THL Terveyden ja Hyvinvoinnin Laitos Prof. Mika Gissler
22 SU Swansea University Mr. Daniel Thayer
i MALTA Ministry for Health, Malta Dr. Miriam Gatt
ii NORWAY The Norwegian Institute of Public Health and the University of Bergen Prof. Kari Klungsøyr
WP6 Accuracy of Anomaly Coding
Partner Acronym Institution Lead Contact
1 SGUL St George's, University of London Prof. Joan Morris
     BINOCAR_CAROBB Congenital Anomaly Register for Oxfordshire, Berkshire & Buckinghamshire Prof. Jennifer Kurinczuk
     BINOCAR_EMYSCAR East Midlands and South Yorkshire Congenital Anomalies Register, University of Leicester Prof. Elizabeth Draper
     BINOCAR_NORCAS Northern Congenital Abnormality Survey Prof. Judith Rankin
     BINOCAR_SWCAR South West Congenital Anomalies Register Dr. Karen Luyt
     BINOCAR_WANDA Wessex Antenatally Detected Anomalies Register Dr. Diana Wellesley
3 RSD Hospital Lillebaelt, Region Syddanmark Denmark Dr. Ester Garne
4 UNEW University of Newcastle upon Tyne Prof. Judith Rankin
5 UNIFE Università Degli Studi Di Ferrara Dr. Amanda Neville
6 KDB Klinika za djecje bolesti Zagreb Prof. Ingeborg Barišić
7 CNR-IFC Consiglio Nazionale Delle Ricerche- Institute of Clinical Physiology Dr. Anna Pierini
8 UMCG Universitair Medisch Centrum, Groningen Dr. Hermien de Walle
9 PHW NHS Public Health Wales National Health Service Trust Mr. David Tucker
11 FISABIO Fundacion Para el Fomento de la Investigacion Sanitaria Y Biomedica de la Comunitat Valenciana Dr. Clara Cavero Carbonell
13 THL Terveyden ja Hyvinvoinnin Laitos Prof. Mika Gissler
19 BIOEF Asociacion Instituto Biodonostia Dr. Olatz Mokoroa Carollo
22 SU Swansea University Mr. Daniel Thayer
WP7 ConnectEpeople Eforum (closed 31 December 2019 by General Assembly vote)
Partner Acronym Institution Lead Contact
1 SGUL St George's, University of London Prof. Joan Morris
2 UU University of Ulster Prof. Marlene Sinclair
4 UNEW University of Newcastle upon Tyne Prof. Judith Rankin
5 UNIFE Università Degli Studi Di Ferrara Dr. Amanda Neville
6 KDB Klinika za djecje bolesti Zagreb Prof. Ingeborg Barišić
7 CNR-IFC Consiglio Nazionale Delle Ricerche- Institute of Clinical Physiology Dr. Anna Pierini
8 UMCG Universitair Medisch Centrum, Groningen Dr. Hermien de Walle
11 FISABIO Fundacion Para el Fomento de la Investigacion Sanitaria Y Biomedica de la Comunitat Valenciana Dr. Clara Cavero Carbonell
12 PUMS Poznan University of Medical Sciences  Prof. Anna Latos-Bielenska
15 OVGU Otto-Von-Guericke-Universitaet Magdeburg, Dr. Anke Rissmann
16 INSA Instituto Nacional de Saude Dr. Ricardo Jorge Dr. Carlos Matias Dias
17 CHUReunion Hospitalier Universitaire De La Reunion Dr. Hanitra Randrianaivo
21 Redburn Redburn Solutions Limited Dr. David Elliott
WP8 Dissemination
Partner Acronym Institution Lead Contact
1 SGUL St George's, University of London Prof. Joan Morris
2 UU University of Ulster Prof. Maria Loane
3 RSD Hospital Lillebaelt, Region Syddanmark Denmark Dr. Ester Garne
4 UNEW University of Newcastle upon Tyne Prof. Judith Rankin
5 UNIFE Università Degli Studi Di Ferrara Dr. Amanda Neville
6 KDB Klinika za djecje bolesti Zagreb Prof. Ingeborg Barišić
7 CNR-IFC Consiglio Nazionale Delle Ricerche- Institute of Clinical Physiology Dr. Anna Pierini
8 UMCG Universitair Medisch Centrum, Groningen Dr. Hermien de Walle
9 PHW NHS Public Health Wales National Health Service Trust Mr. David Tucker
10 INSERM Institut National de la Sante et de la Recherche Medicale Dr. Babak Khoshnood
11 FISABIO Fundacion Para el Fomento de la Investigacion Sanitaria Y Biomedica de la Comunitat Valenciana Dr. Clara Cavero Carbonell
12 PUMS Poznan University of Medical Sciences  Prof. Anna Latos-Bielenska
13 THL Terveyden ja Hyvinvoinnin Laitos Prof. Mika Gissler
14 OMNI NET International Charitable Fund Omni-Net for Children Dr. Nataliia Zymak-Zakutnya 
15 OVGU Otto-Von-Guericke-Universitaet Magdeburg, Dr. Anke Rissmann
16 INSA Instituto Nacional de Saude Dr. Ricardo Jorge Dr. Carlos Matias Dias
17 CHUReunion Hospitalier Universitaire De La Reunion Dr. Hanitra Randrianaivo
18 PIH Provinciaal Instituut Voor Hygiene, Dr. Vera Nelen
19 BIOEF Asociacion Instituto Biodonostia Dr. Olatz Mokoroa Carollo
20 BIOMED Biomedical Computing Ltd Dr. James Densem
WP9 Ethics
Partner Acronym Institution Lead Contact
1 SGUL/BINOCAR St George's, University of London Prof. Joan Morris
     BINOCAR_CAROBB Congenital Anomaly Register for Oxfordshire, Berkshire & Buckinghamshire Prof. Jennifer Kurinczuk
     BINOCAR_EMYSCAR East Midlands and South Yorkshire Congenital Anomalies Register, University of Leicester Prof. Elizabeth Draper
     BINOCAR_NORCAS Northern Congenital Abnormality Survey Prof. Judith Rankin
     BINOCAR_SWCAR South West Congenital Anomalies Register Dr. Karen Luyt
     BINOCAR_WANDA Wessex Antenatally Detected Anomalies Register Dr. Diana Wellesley
2 UU University of Ulster Prof. Maria Loane
3 RSD Hospital Lillebaelt, Region Syddanmark Denmark Dr. Ester Garne
4 UNEW University of Newcastle upon Tyne Prof. Judith Rankin
5 UNIFE Università Degli Studi Di Ferrara Dr. Amanda Neville
6 KDB Klinika za djecje bolesti Zagreb Prof. Ingeborg Barišić
7 CNR-IFC Consiglio Nazionale Delle Ricerche- Institute of Clinical Physiology Dr. Anna Pierini
8 UMCG Universitair Medisch Centrum, Groningen Dr. Hermien de Walle
9 PHW NHS Public Health Wales National Health Service Trust Mr. David Tucker
10 INSERM Institut National de la Sante et de la Recherche Medicale Dr. Babak Khoshnood
11 FISABIO Fundacion Para el Fomento de la Investigacion Sanitaria Y Biomedica de la Comunitat Valenciana Dr. Clara Cavero Carbonell
12 PUMS Poznan University of Medical Sciences  Prof. Anna Latos-Bielenska
13 THL Terveyden ja Hyvinvoinnin Laitos Prof. Mika Gissler
14 OMNI NET International Charitable Fund Omni-Net for Children Dr. Nataliia Zymak-Zakutnya 
15 OVGU Otto-Von-Guericke-Universitaet Magdeburg, Dr. Anke Rissmann
16 INSA Instituto Nacional de Saude Dr. Ricardo Jorge Dr. Carlos Matias Dias
17 CHUReunion Hospitalier Universitaire De La Reunion Dr. Hanitra Randrianaivo
18 PIH Provinciaal Instituut Voor Hygiene, Dr. Vera Nelen
19 BIOEF Asociacion Instituto Biodonostia Dr. Olatz Mokoroa Carollo
20 BIOMED Biomedical Computing Ltd Dr. James Densem
21 Redburn Redburn Solutions Limited Dr. David Elliott
22 SU Swansea University Mr. Daniel Thayer
i MALTA Ministry for Health, Malta Dr. Miriam Gatt
ii NORWAY The Norwegian Institute of Public Health and the University of Bergen Prof. Kari Klungsøyr