WP1 |
Coordination |
|
|
Partner |
Acronym |
Institution |
Lead Contact |
1 |
SGUL |
St George's, University of London |
Prof. Joan Morris |
2 |
UU |
University of Ulster |
Prof. Maria Loane |
3 |
RSD |
Hospital Lillebaelt, Region Syddanmark Denmark |
Dr. Ester Garne |
4 |
UNEW |
University of Newcastle upon Tyne |
Prof. Judith Rankin |
5 |
UNIFE |
Università Degli Studi Di Ferrara |
Dr. Amanda Neville |
6 |
KDB |
Klinika za djecje bolesti Zagreb |
Prof. Ingeborg Barišić |
7 |
CNR-IFC |
Consiglio Nazionale Delle Ricerche- Institute of Clinical Physiology |
Dr. Anna Pierini |
8 |
UMCG |
Universitair Medisch Centrum Groningen, |
Dr. Hermien de Walle |
12 |
PUMS |
Poznan University of Medical Sciences |
Prof. Anna Latos-Bielenska |
20 |
BIOMED |
Biomedical Computing Ltd |
Dr. James Densem |
|
|
|
|
WP2 |
Central Results Repository |
|
Partner |
Acronym |
Institution |
Lead Contact |
1 |
SGUL/BINOCAR |
St George's, University of London |
Prof. Joan Morris |
|
BINOCAR_CAROBB |
Congenital Anomaly Register for Oxfordshire, Berkshire & Buckinghamshire |
Prof. Jennifer Kurinczuk |
|
BINOCAR_EMYSCAR |
East Midlands and South Yorkshire Congenital Anomalies Register, University of Leicester |
Prof. Elizabeth Draper |
|
BINOCAR_NORCAS |
Northern Congenital Abnormality Survey |
Prof. Judith Rankin |
|
BINOCAR_SWCAR |
South West Congenital Anomalies Register |
Dr. Karen Luyt |
|
BINOCAR_WANDA |
Wessex Antenatally Detected Anomalies Register |
Dr. Diana Wellesley |
2 |
UU |
University of Ulster |
Prof. Maria Loane |
3 |
RSD |
Hospital Lillebaelt, Region Syddanmark Denmark |
Dr. Ester Garne |
4 |
UNEW |
University of Newcastle upon Tyne |
Prof. Judith Rankin |
5 |
UNIFE |
Università Degli Studi Di Ferrara |
Dr. Amanda Neville |
6 |
KDB |
Klinika za djecje bolesti Zagreb |
Prof. Ingeborg Barišić |
7 |
CNR-IFC |
Consiglio Nazionale Delle Ricerche- Institute of Clinical Physiology |
Dr. Anna Pierini |
8 |
UMCG |
Universitair Medisch Centrum, Groningen |
Dr. Hermien de Walle |
9 |
PHW NHS |
Public Health Wales National Health Service Trust |
Mr. David Tucker |
10 |
INSERM |
Institut National de la Sante et de la Recherche Medicale |
Dr. Babak Khoshnood |
11 |
FISABIO |
Fundacion Para el Fomento de la Investigacion Sanitaria Y Biomedica de la Comunitat Valenciana |
Dr. Clara Cavero Carbonell |
13 |
THL |
Terveyden ja Hyvinvoinnin Laitos |
Prof. Mika Gissler |
14 |
OMNI NET |
International Charitable Fund Omni-Net for Children |
Dr. Nataliia Zymak-Zakutnya |
15 |
OVGU |
Otto-Von-Guericke-Universitaet Magdeburg, |
Dr. Anke Rissmann |
16 |
INSA |
Instituto Nacional de Saude Dr. Ricardo Jorge |
Dr. Carlos Matias Dias |
17 |
CHUReunion |
Hospitalier Universitaire De La Reunion |
Dr. Hanitra Randrianaivo |
18 |
PIH |
Provinciaal Instituut Voor Hygiene, |
Dr. Vera Nelen |
19 |
BIOEF |
Asociacion Instituto Biodonostia |
Dr. Olatz Mokoroa Carollo |
20 |
BIOMED |
Biomedical Computing Ltd |
Dr. James Densem |
22 |
SU |
Swansea University |
Mr. Daniel Thayer |
i |
MALTA |
Ministry for Health, Malta |
Dr. Miriam Gatt |
ii |
NORWAY |
The Norwegian Institute of Public Health and the University of Bergen |
Prof. Kari Klungsøyr |
|
|
|
|
WP3 |
Mortality |
|
|
Partner |
Acronym |
Institution |
Lead Contact |
1 |
SGUL |
St George's, University of London |
Prof. Joan Morris |
|
BINOCAR_CAROBB |
Congenital Anomaly Register for Oxfordshire, Berkshire & Buckinghamshire |
Prof. Jennifer Kurinczuk |
|
BINOCAR_EMYSCAR |
East Midlands and South Yorkshire Congenital Anomalies Register, University of Leicester |
Prof. Elizabeth Draper |
|
BINOCAR_NORCAS |
Northern Congenital Abnormality Survey |
Prof. Judith Rankin |
|
BINOCAR_SWCAR |
South West Congenital Anomalies Register |
Dr. Karen Luyt |
|
BINOCAR_WANDA |
Wessex Antenatally Detected Anomalies Register |
Dr. Diana Wellesley |
3 |
RSD |
Hospital Lillebaelt, Region Syddanmark Denmark |
Dr. Ester Garne |
4 |
UNEW |
University of Newcastle upon Tyne |
Prof. Judith Rankin |
5 |
UNIFE |
Università Degli Studi Di Ferrara |
Dr. Amanda Neville |
6 |
KDB |
Klinika za djecje bolesti Zagreb |
Prof. Ingeborg Barišić |
7 |
CNR-IFC |
Consiglio Nazionale Delle Ricerche- Institute of Clinical Physiology |
Dr. Anna Pierini |
8 |
UMCG |
Universitair Medisch Centrum, Groningen |
Dr. Hermien de Walle |
9 |
PHW NHS |
Public Health Wales National Health Service Trust |
Mr. David Tucker |
10 |
INSERM |
Institut National de la Sante et de la Recherche Medicale |
Dr. Babak Khoshnood |
11 |
FISABIO |
Fundacion Para el Fomento de la Investigacion Sanitaria Y Biomedica de la Comunitat Valenciana |
Dr. Clara Cavero Carbonell |
13 |
THL |
Terveyden ja Hyvinvoinnin Laitos |
Prof. Mika Gissler |
14 |
OMNI NET |
International Charitable Fund Omni-Net for Children |
Dr. Nataliia Zymak-Zakutnya |
15 |
OVGU |
Otto-Von-Guericke-Universitaet Magdeburg, |
Dr. Anke Rissmann |
17 |
CHUReunion |
Hospitalier Universitaire De La Reunion |
Dr. Hanitra Randrianaivo |
18 |
PIH |
Provinciaal Instituut Voor Hygiene, |
Dr. Vera Nelen |
19 |
BIOEF |
Asociacion Instituto Biodonostia |
Dr. Olatz Mokoroa Carollo |
22 |
SU |
Swansea University |
Mr. Daniel Thayer |
i |
MALTA |
Ministry for Health, Malta |
Dr. Miriam Gatt |
ii |
NORWAY |
The Norwegian Institute of Public Health and the University of Bergen |
Prof. Kari Klungsøyr |
|
|
|
|
|
|
|
|
WP4 |
Morbidity |
|
|
Partner |
Acronym |
Institution |
Lead Contact |
1 |
SGUL |
St George's, University of London |
Prof. Joan Morris |
|
BINOCAR_CAROBB |
Congenital Anomaly Register for Oxfordshire, Berkshire & Buckinghamshire |
Prof. Jennifer Kurinczuk |
|
BINOCAR_EMYSCAR |
East Midlands and South Yorkshire Congenital Anomalies Register, University of Leicester |
Prof. Elizabeth Draper |
|
BINOCAR_NORCAS |
Northern Congenital Abnormality Survey |
Prof. Judith Rankin |
|
BINOCAR_SWCAR |
South West Congenital Anomalies Register |
Dr. Karen Luyt |
|
BINOCAR_WANDA |
Wessex Antenatally Detected Anomalies Register |
Dr. Diana Wellesley |
2 |
UU |
University of Ulster |
Prof. Maria Loane |
3 |
RSD |
Hospital Lillebaelt, Region Syddanmark Denmark |
Dr. Ester Garne |
4 |
UNEW |
University of Newcastle upon Tyne |
Prof. Judith Rankin |
5 |
UNIFE |
Università Degli Studi Di Ferrara |
Dr. Amanda Neville |
6 |
KDB |
Klinika za djecje bolesti Zagreb |
Prof. Ingeborg Barišić |
7 |
CNR-IFC |
Consiglio Nazionale Delle Ricerche- Institute of Clinical Physiology |
Dr. Anna Pierini |
8 |
UMCG |
Universitair Medisch Centrum, Groningen |
Dr. Hermien de Walle |
9 |
PHW NHS |
Public Health Wales National Health Service Trust |
Mr. David Tucker |
11 |
FISABIO |
Fundacion Para el Fomento de la Investigacion Sanitaria Y Biomedica de la Comunitat Valenciana |
Dr. Clara Cavero Carbonell |
13 |
THL |
Terveyden ja Hyvinvoinnin Laitos |
Prof. Mika Gissler |
16 |
INSA |
Instituto Nacional de Saude Dr. Ricardo Jorge |
Dr. Carlos Matias Dias |
17 |
CHUReunion |
Hospitalier Universitaire De La Reunion |
Dr. Hanitra Randrianaivo |
19 |
BIOEF |
Asociacion Instituto Biodonostia |
Dr. Olatz Mokoroa Carollo |
22 |
SU |
Swansea University |
Mr. Daniel Thayer |
|
|
|
|
WP5 |
Education |
|
|
Partner |
Acronym |
Institution |
Lead Contact |
1 |
SGUL |
St George's, University of London |
Prof. Joan Morris |
|
BINOCAR_CAROBB |
Congenital Anomaly Register for Oxfordshire, Berkshire & Buckinghamshire |
Prof. Jennifer Kurinczuk |
|
BINOCAR_EMYSCAR |
East Midlands and South Yorkshire Congenital Anomalies Register, University of Leicester |
Prof. Elizabeth Draper |
|
BINOCAR_NORCAS |
Northern Congenital Abnormality Survey |
Prof. Judith Rankin |
|
BINOCAR_SWCAR |
South West Congenital Anomalies Register |
Dr. Karen Luyt |
|
BINOCAR_WANDA |
Wessex Antenatally Detected Anomalies Register |
Dr. Diana Wellesley |
3 |
RSD |
Hospital Lillebaelt, Region Syddanmark Denmark |
Dr. Ester Garne |
4 |
UNEW |
University of Newcastle upon Tyne |
Prof. Judith Rankin |
5 |
UNIFE |
Università Degli Studi Di Ferrara |
Dr. Amanda Neville |
7 |
CNR-IFC |
Consiglio Nazionale Delle Ricerche- Institute of Clinical Physiology |
Dr. Anna Pierini |
9 |
PHW NHS |
Public Health Wales National Health Service Trust |
Mr. David Tucker |
13 |
THL |
Terveyden ja Hyvinvoinnin Laitos |
Prof. Mika Gissler |
22 |
SU |
Swansea University |
Mr. Daniel Thayer |
i |
MALTA |
Ministry for Health, Malta |
Dr. Miriam Gatt |
ii |
NORWAY |
The Norwegian Institute of Public Health and the University of Bergen |
Prof. Kari Klungsøyr |
|
|
|
|
WP6 |
Accuracy of Anomaly Coding |
|
Partner |
Acronym |
Institution |
Lead Contact |
1 |
SGUL |
St George's, University of London |
Prof. Joan Morris |
|
BINOCAR_CAROBB |
Congenital Anomaly Register for Oxfordshire, Berkshire & Buckinghamshire |
Prof. Jennifer Kurinczuk |
|
BINOCAR_EMYSCAR |
East Midlands and South Yorkshire Congenital Anomalies Register, University of Leicester |
Prof. Elizabeth Draper |
|
BINOCAR_NORCAS |
Northern Congenital Abnormality Survey |
Prof. Judith Rankin |
|
BINOCAR_SWCAR |
South West Congenital Anomalies Register |
Dr. Karen Luyt |
|
BINOCAR_WANDA |
Wessex Antenatally Detected Anomalies Register |
Dr. Diana Wellesley |
3 |
RSD |
Hospital Lillebaelt, Region Syddanmark Denmark |
Dr. Ester Garne |
4 |
UNEW |
University of Newcastle upon Tyne |
Prof. Judith Rankin |
5 |
UNIFE |
Università Degli Studi Di Ferrara |
Dr. Amanda Neville |
6 |
KDB |
Klinika za djecje bolesti Zagreb |
Prof. Ingeborg Barišić |
7 |
CNR-IFC |
Consiglio Nazionale Delle Ricerche- Institute of Clinical Physiology |
Dr. Anna Pierini |
8 |
UMCG |
Universitair Medisch Centrum, Groningen |
Dr. Hermien de Walle |
9 |
PHW NHS |
Public Health Wales National Health Service Trust |
Mr. David Tucker |
11 |
FISABIO |
Fundacion Para el Fomento de la Investigacion Sanitaria Y Biomedica de la Comunitat Valenciana |
Dr. Clara Cavero Carbonell |
13 |
THL |
Terveyden ja Hyvinvoinnin Laitos |
Prof. Mika Gissler |
19 |
BIOEF |
Asociacion Instituto Biodonostia |
Dr. Olatz Mokoroa Carollo |
22 |
SU |
Swansea University |
Mr. Daniel Thayer |
|
|
|
|
WP7 |
ConnectEpeople Eforum (closed 31 December 2019 by General Assembly vote)
|
|
Partner |
Acronym |
Institution |
Lead Contact |
1 |
SGUL |
St George's, University of London |
Prof. Joan Morris |
2 |
UU |
University of Ulster |
Prof. Marlene Sinclair |
4 |
UNEW |
University of Newcastle upon Tyne |
Prof. Judith Rankin |
5 |
UNIFE |
Università Degli Studi Di Ferrara |
Dr. Amanda Neville |
6 |
KDB |
Klinika za djecje bolesti Zagreb |
Prof. Ingeborg Barišić |
7 |
CNR-IFC |
Consiglio Nazionale Delle Ricerche- Institute of Clinical Physiology |
Dr. Anna Pierini |
8 |
UMCG |
Universitair Medisch Centrum, Groningen |
Dr. Hermien de Walle |
11 |
FISABIO |
Fundacion Para el Fomento de la Investigacion Sanitaria Y Biomedica de la Comunitat Valenciana |
Dr. Clara Cavero Carbonell |
12 |
PUMS |
Poznan University of Medical Sciences |
Prof. Anna Latos-Bielenska |
15 |
OVGU |
Otto-Von-Guericke-Universitaet Magdeburg, |
Dr. Anke Rissmann |
16 |
INSA |
Instituto Nacional de Saude Dr. Ricardo Jorge |
Dr. Carlos Matias Dias |
17 |
CHUReunion |
Hospitalier Universitaire De La Reunion |
Dr. Hanitra Randrianaivo |
21 |
Redburn |
Redburn Solutions Limited |
Dr. David Elliott |
|
|
|
|
WP8 |
Dissemination |
|
|
Partner |
Acronym |
Institution |
Lead Contact |
1 |
SGUL |
St George's, University of London |
Prof. Joan Morris |
2 |
UU |
University of Ulster |
Prof. Maria Loane |
3 |
RSD |
Hospital Lillebaelt, Region Syddanmark Denmark |
Dr. Ester Garne |
4 |
UNEW |
University of Newcastle upon Tyne |
Prof. Judith Rankin |
5 |
UNIFE |
Università Degli Studi Di Ferrara |
Dr. Amanda Neville |
6 |
KDB |
Klinika za djecje bolesti Zagreb |
Prof. Ingeborg Barišić |
7 |
CNR-IFC |
Consiglio Nazionale Delle Ricerche- Institute of Clinical Physiology |
Dr. Anna Pierini |
8 |
UMCG |
Universitair Medisch Centrum, Groningen |
Dr. Hermien de Walle |
9 |
PHW NHS |
Public Health Wales National Health Service Trust |
Mr. David Tucker |
10 |
INSERM |
Institut National de la Sante et de la Recherche Medicale |
Dr. Babak Khoshnood |
11 |
FISABIO |
Fundacion Para el Fomento de la Investigacion Sanitaria Y Biomedica de la Comunitat Valenciana |
Dr. Clara Cavero Carbonell |
12 |
PUMS |
Poznan University of Medical Sciences |
Prof. Anna Latos-Bielenska |
13 |
THL |
Terveyden ja Hyvinvoinnin Laitos |
Prof. Mika Gissler |
14 |
OMNI NET |
International Charitable Fund Omni-Net for Children |
Dr. Nataliia Zymak-Zakutnya |
15 |
OVGU |
Otto-Von-Guericke-Universitaet Magdeburg, |
Dr. Anke Rissmann |
16 |
INSA |
Instituto Nacional de Saude Dr. Ricardo Jorge |
Dr. Carlos Matias Dias |
17 |
CHUReunion |
Hospitalier Universitaire De La Reunion |
Dr. Hanitra Randrianaivo |
18 |
PIH |
Provinciaal Instituut Voor Hygiene, |
Dr. Vera Nelen |
19 |
BIOEF |
Asociacion Instituto Biodonostia |
Dr. Olatz Mokoroa Carollo |
20 |
BIOMED |
Biomedical Computing Ltd |
Dr. James Densem |
|
|
|
|
WP9 |
Ethics |
|
|
Partner |
Acronym |
Institution |
Lead Contact |
1 |
SGUL/BINOCAR |
St George's, University of London |
Prof. Joan Morris |
|
BINOCAR_CAROBB |
Congenital Anomaly Register for Oxfordshire, Berkshire & Buckinghamshire |
Prof. Jennifer Kurinczuk |
|
BINOCAR_EMYSCAR |
East Midlands and South Yorkshire Congenital Anomalies Register, University of Leicester |
Prof. Elizabeth Draper |
|
BINOCAR_NORCAS |
Northern Congenital Abnormality Survey |
Prof. Judith Rankin |
|
BINOCAR_SWCAR |
South West Congenital Anomalies Register |
Dr. Karen Luyt |
|
BINOCAR_WANDA |
Wessex Antenatally Detected Anomalies Register |
Dr. Diana Wellesley |
2 |
UU |
University of Ulster |
Prof. Maria Loane |
3 |
RSD |
Hospital Lillebaelt, Region Syddanmark Denmark |
Dr. Ester Garne |
4 |
UNEW |
University of Newcastle upon Tyne |
Prof. Judith Rankin |
5 |
UNIFE |
Università Degli Studi Di Ferrara |
Dr. Amanda Neville |
6 |
KDB |
Klinika za djecje bolesti Zagreb |
Prof. Ingeborg Barišić |
7 |
CNR-IFC |
Consiglio Nazionale Delle Ricerche- Institute of Clinical Physiology |
Dr. Anna Pierini |
8 |
UMCG |
Universitair Medisch Centrum, Groningen |
Dr. Hermien de Walle |
9 |
PHW NHS |
Public Health Wales National Health Service Trust |
Mr. David Tucker |
10 |
INSERM |
Institut National de la Sante et de la Recherche Medicale |
Dr. Babak Khoshnood |
11 |
FISABIO |
Fundacion Para el Fomento de la Investigacion Sanitaria Y Biomedica de la Comunitat Valenciana |
Dr. Clara Cavero Carbonell |
12 |
PUMS |
Poznan University of Medical Sciences |
Prof. Anna Latos-Bielenska |
13 |
THL |
Terveyden ja Hyvinvoinnin Laitos |
Prof. Mika Gissler |
14 |
OMNI NET |
International Charitable Fund Omni-Net for Children |
Dr. Nataliia Zymak-Zakutnya |
15 |
OVGU |
Otto-Von-Guericke-Universitaet Magdeburg, |
Dr. Anke Rissmann |
16 |
INSA |
Instituto Nacional de Saude Dr. Ricardo Jorge |
Dr. Carlos Matias Dias |
17 |
CHUReunion |
Hospitalier Universitaire De La Reunion |
Dr. Hanitra Randrianaivo |
18 |
PIH |
Provinciaal Instituut Voor Hygiene, |
Dr. Vera Nelen |
19 |
BIOEF |
Asociacion Instituto Biodonostia |
Dr. Olatz Mokoroa Carollo |
20 |
BIOMED |
Biomedical Computing Ltd |
Dr. James Densem |
21 |
Redburn |
Redburn Solutions Limited |
Dr. David Elliott |
22 |
SU |
Swansea University |
Mr. Daniel Thayer |
i |
MALTA |
Ministry for Health, Malta |
Dr. Miriam Gatt |
ii |
NORWAY |
The Norwegian Institute of Public Health and the University of Bergen |
Prof. Kari Klungsøyr |