In creating a standardised dataset for each of 22 Participating EUROCAT registries in 14 European countries containing a total of around 200,000 births we will:
- Enable reliable information on rare anomalies and syndromes to be obtained.
- Enable results to be generalisable across Europe.
- Establish a method of standardisation across Europe available for future research.
- Demonstrate that pan-European analysis of sensitive information can be performed safely.