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WP4 Deliverable D4.1: Report on hospitalisations and surgery across Europe for the first 5 years of life

Authors: Ester Garne, Stine Kjaer Urhoj, Maria Loane, Joanne Given, Joachim Tan, Joan Morris

Contributing participants and partners (in Beneficiary numerical order): Joachim Tan, Abigail Reid, Gillian Briggs, Hugh Claridge, Joan Morris (SGUL), Maria Loane, Joanne Given, Katy Karnell, Joanne Watt (UU), Ester Garne, Stine Kjaer Urhoj, Mads Damkjær, Christina Neergaard Pedersen (RSD), Judith Rankin (UNEW), Amanda Neville, Gianni Astolfi, Aurora Puccini, Annarita Armaroli (UNIFE), Ingeborg Barišic, Ljubica Odak (KDB), Anna Pierini, Alessio Coi, Michele Santoro, Silvia Baldacci (CNR-IFC), Hermien de Walle, Renée Lutke, Nicole Siemensma-Mühlenberg (UMCG), David Tucker, Daniel Thayer, Ieuan Scanlon, Sue Jordan (PHW NHS, SU), Clara Cavero Carbonell, Óscar Zurriaga, Sandra Moreno Marro, Laia Barrachina Bonet, Laura García Villodre (FISABIO), Mika Gissler, Anna Heino, Sonja Kiuru-Kuhlefelt, Tuuli Puroharju (THL), Carlos Dias, Paula Braz, Ausenda Machado, Liliana Antunes (INSA), Hanitra Randrianaivo (CHURéunion), Olatz Mokoroa Carollo (BIOEF)

Lay Summary:
In this part of the EUROlinkCAT project we analysed the health-related data of children born with and without a congenital anomaly during the first five years of their life. Eight European congenital anomaly registries, which are part of the European Surveillance of Congenital Anomalies network (EUROCAT), successfully linked their records of children with congenital anomalies and also records of children without congenital anomalies to local hospital databases. Ensuring that the data in the different databases was consistent was very time consuming and involved many decisions about specific aspects of the data. Our analysis found that children born with congenital anomalies are more frequently in hospital and have longer hospital stays than children at the same ages who do not have congenital anomalies. We also found that approximately a third of all children born with a congenital anomaly will undergo an operation in the first year of their life, and approximately a third will undergo an operation at age 1-4 years. These figures are higher than in children without congenital anomalies, where 1% will undergo an operation in the first year of life, and 5% will undergo an operation at age 1-4 years. Overall, the results seemed to be consistent across registries and countries. We will analyse the data in more detail over the next year.

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